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February 2008

My Daily Peanut Allergy Dosage & SunButter

My Daily Dosage Update
After 8 months, my daily dosage is now the equivalent of about 4 peanuts! When I first started in the peanut allergy treatment research study, my daily dosage was very small.

SunButter Is a Delicious Alternative to Peanut Butter
My dad really misses his peanut butter & jelly sandwiches so he recently ordered some SunButter® as a peanut butter alternative. Sunbutter_creamy

SunButter is made from sunflower seed in a peanut-free facility. I was never a fan of the texture or taste of peanut butter so I have not tried it yet, but Dad loves it. It definitely looks and smells just like peanut butter and Dad swears it tastes like peanut butter too! He got the creamy kind but it also comes in chunky and other types.

TrailmixpackThey also have a peanut-free snack trailmix with fruit that he likes too. Order at www.sunbutter.com.


Food Allergy Database Concept

My Daily Dosage Update
After 7 months, my daily dosage is now roughly the equivalent of 3 peanuts! When I first started in the peanut allergy treatment research study, my daily dosage was only just a few grains.

Food Allergy Database Concept
We are considering building a web based database resource for people with food allergies and for food allergy researchers. After reading the description below, we would appreciate your feedback about this database idea by submitting a comment to this post or an e-mail.

Think of this concept as a web based, searchable database that combines the usual benefits of searchable data (though it would consist only of self reported information) with the combined benefits that chat sites, customer review/ratings sites and mapquest/google maps sites provide.
The data would only be as personal as the submitter would want it to be. The submitter could answer as many or few questions as they liked and have control over their privacy options.

Example Database Questions and Data:
  • Year of Birth = 2001
  • sex = [blank]
  • country = USA
  • State = LA
  • city = New Orleans
  • street name = [blank]
  • zip = 70448
  • permission to publish street address = no
  • food allergy 1 = peanut
  • food allergy 2 = dairy
  • history of asthma = yes
  • history of exzema = yes
  • twin = N/A
  • sibling(s) = yes
  • sibling(s) has a food allergy = yes
  • sibling food allergy = same
  • parent(s) food allergy = N/A
  • e-mail address = askaboutmypeanutallergy @ gmail.com
  • display e-mail address? = no
  • Opt in to receive survey/research invitations by e-mail without your e-mail being shared with sender? = yes

Now that you have read the database concept above, we would appreciate your feedback about this idea by submitting a comment to this post or an e-mail.

Thank you!


Peanut Free Dining at Disney: Days 2 & 3

Sunday at Hollywood Studios (formerly MGM), I ate at the Backlot Express for lunch. I had peanut free chicken nuggets, french fries and grapes from the kid's menu. It was all pretty good. What a cool day, my cousin and I got picked from the audience to undergo Jedi Knight training! We got to go on-stage with other kids...Jedis... and we finished our training by dueling light sabers with Darth Vader...yes THE Darth Vader! Totally wicked!

Sunday night we had dinner reservations at Tony's Town Square in Magic Kingdom. Chef Eric came to our table before the meal and explained what I could safely eat on the menu despite my peanut allergy. Chef Eric explained that in this Italian restaurant, all the food on the menu was peanut safe, except for the breads, because they were manaufactured in a plant that also processed nut products, and there was the same cross-contamination risk with most of the desserts. I wanted cheese pizza and a taste of Dad's chicken parmigana which Chef Eric said was OK. I was sad about missing dessert so he made me a peanut safe sundae made of Edy's vanilla ice cream with chocolate sauce and Mickey sprinkles! Everyone really liked their food at Tony's.

Monday I ate cheese pizza for lunch at Pizzafari in Animal Kingdom, it was OK. For dinner, I ate a good cheeseburger with french fries and apple slices at the ABC Commissary in Hollywood Studios (formerly MGM). So far, all the food in the Disney parks has been good and with the help from the Disney Park Special Diets Group, and the Disney chefs, Mom and Dad have not been all stressed out about eating out!

Bo
Certified Jedi Knight-in-Training


Peanut Safe Dining At Disney - Day 1

Greetings from Disney World in Orlando. We are staying at the Beach Club Villas because they have a fully equipped kitchen and fridge so we can cook some of our own meals. Our villa room is huge and the hotel has it's own beach, lakes and even a pool with a pirate ship! How cool is that? Today the weather was awesome and my favorite rides at Magic Kingdom wereThunder Mountain and Buzz Lightyear!

Mom is a travel agent, so she had made all our dinner reservations in advance. Then she contacted Brenda Bennett at Magic Kingdom Foods after reading on PeanutAllergy.com Discussion Boards about how she helps people with peanut allergies and other food allergies plan safe meals while at the Disney parks. (see Disney Park Special Diets Contact Info at the bottom of this post).

Tonight we had a delicious peanut free family-style dinner at Liberty Tree Tavern with our friends and a bunch of Disney characters. Chef Rob came to our table before the meal and explained what I could eat on the menu that was peanut free. I was glad to hear that all the food on the menu was peanut safe, except for the apple cobbler dessert. Chef Rob suggested Edy's vanilla ice cream for my dessert but Mom asked if he was sure about the Edy's brand. Chef Rob explained how he cooks for about 15 peanut allergic people every day at Disney and that the ice cream and the whole meal would be OK for me to eat. So we all relaxed and had a great dinner. I ate rolls, roast beef, turkey and Edy's vanilla ice cream for dessert and it was all great!

Chef Rob also did something really cool for my friend who had a freak accident yesterday eating a popsicle in the park. My friend had accidentally jammed the stick into the back of his mouth and cut it really bad. When Chef Rob heard that story, he made a special bowl of extra smooth mashed potatoes with extra milk to make it easier for my friend to eat!

Disney chefs rock and go out of their way to take care of kids dining at the park whether they have food allergies or not, plus their food is delicious!

Bo

How to Contact Disney Park Special Diets