Bo's Peanut Allergy Treatment Success Story!
July 27, 2012
Great news, after 5 years (and 65,000 miles) of participating in the Arkansas Children's Hospital (ACH) peanut allergy desensitization treatment study, Bo passed his final peanut food challenge! He has now been declared "tolerant" to peanuts! During this blinded food challenge increasing dosages were consumed in the hospital's pediatric clinical research facility on a strictly timed schedule. There were several rounds of these food challenges which included a blinded series where we did not know if Bo was getting the placebo or peanut protein in the form of peanut flour. When all was said and done, in the final 1/2 day Bo had eaten enough peanut flour and actual peanut butter to equate to about 4 tablespoons of peanut butter... with no reaction at all! We were also shown the 5 years of Bo's blood IGe level charts. They clearly showed his starting point of over a 100 which remained constant throughout year one (turns out he had gotten placebo year 1). Then in year 2 his IGe scores sharply increase as his body escalated it's response to the constant peanut protein exposure. Later in the year and subsequent years his IGe scores show a constant decline until today, 5 years later, where they have stabilized at <10 IGe! We feel extremely blessed to have been able to participate in such a successful peanut allergy desensitization study. We now have clinical proof that long term, medically supervised, gradual food allergen exposure desensitization therapy holds great promise for people with life threatening food allergies. The lack of improvement or reaction during Bo's placebo phases and challenges also substantially validates that these life threatening food allergy reactions are physical responses from the body and NOT psychological responses. Bo has now graduated from the peanut allergy study. This means he will only be monitored once a year from now on with blood work and skin tests. We no longer are required to read labels or avoid peanuts in his diet. We have been advised for Bo to continue to eat peanuts or peanut butter several times a week to maintain his desensitization to peanuts. Other kids in the study have been doing this final maintenance phase for over a year with no peanut reactions. Words can not express the gratitude we have for the staff at Arkansas Children's Hospital (ACH) food allergy research group including Dr. Stacie Jones, nurse Anne and nurse Karen! In addition we want to thank all of our family, friends and blog readers for the many kind comments, emails and prayers of support over the past 5 years of Bo's incredible journey to a peanut allergy free life! I want to thank my wife Betsy for her tireless dedication as Bo's mother and as my soulmate. She was relentless in her drive to make this peanut allergy therapy an option for Bo and selflessly did whatever it took to keep Bo safe including making the 750 mile round trip from S. Louisiana to Little Rock every other week for two years and then again and again and again. I want to honor Bo for his tremendous courage, selflessness and great positive spirit. He was only 5 years old when his peanut allergy treatments began and he is now an amazing little 10 year old man who I am proud of beyond words. Love you little man! Finally, we want to thank God above for making all things possible. P.S. To receive information about clinical trials enrolling at Arkansas Children's Hospital (ACH) text "RESEARCH" in the body of a text message to 772937 as you would a phone number. Sincerely, Bo's Parents askaboutmypeanutallergy.com
This is incredible news. Thank you for sharing. I will share this site with others.
I hope you celebrated well and congratulations!
Posted by: gratefulfoodie | September 23, 2012 at 10:49 PM
Hi Bo's Parents!
What was the level of Bo's reaction to peanuts before he began treatment? Was it off the charts like our son's (how do they rate it, 4+ I believe?), or somewhat less?
We are reluctant to do the treatment due to the high risks for our severely allergic child (isn't that ironic?) and the treatment still being new and unproven (at least 5 or 6 years ago it was, when we last considered the treatment).
Posted by: HelicopterFather | August 29, 2012 at 10:18 AM
This is awesome! It gives me hope for my daughter.
Posted by: Jennifer from MN | August 29, 2012 at 09:31 AM
Please thank Bo. My son is in a program in Tulsa, OK. that would not have been possible without all the hard work that Bo, his parents, and the medical team has done. Originally, the team thought it would take 6-7 months to reach maintenance dose but it has gone so well that we are looking at maintenance dose in 4 to 6 more weeks. We began the end of May 2012, 3 months total. God is Good, always!
Posted by: Susan | August 05, 2012 at 12:22 PM
Yes we did multiple food challenges, blood tests and skin allergy tests before, during and after Bo's peanut allergy desensitization treatment study at Arkansas Childern's Hospital in Little Rock.
Posted by: Bo's Parents | July 31, 2012 at 06:45 AM